Devin'sMile ~ DevinSmile

...Because a journey of a thousand miles
begins with a single step...


New School year, new worries, amazing support system

Posted by Ivonne R on August 20, 2013 at 1:50 PM

Well this new school year started with a bang (for me, more so than for Devin!).  Not sure if it was the whole hoopla of school starting and the hustle and bustle that comes along with it, but the week leading to school was a bit of a letdown for us...

    • The school we want Devin to attend, South Florida Autism Charter School that we are on a wait list for (#2 at this time!) was not able to get him for the new school year.  Although we haven't given up on this, we are now hoping for 3rd grade as I'm not sure to disrupt his schedule again would be a good idea
    • Because we were on a stand still waiting for the other school, by the time we advise his current school that he was in fact coming, it was too late to get Devin's chair (adaptive chair that keeps him in place) so on the first WEEK of school, Devin had his stroller as a device to keep him in place.

Two weeks into school and I'm going thru some emotions that i thought i was done going thru, but i guess with switching schools and everything that has come with it, I'm at that place again... question myself over and over...

    1. Am i doing enough for him?
    2. Is the ASD program the right program for him?
    3. Is he being dealt with properly?
    4. Are they minding him and giving him as much attention as i think he should be getting?

*sigh* I don't know all the answers to this and i guess time will tell... in the mean time i continue to drive myself crazy... and what i say about the let downs don't necessarily stop with just the school related...

    • We found out the new AFO's (ortho inserts to stabilize his walking) are going to cost us TWICE what they did 2 years ago, which wasn't cheap to begin with... FUN TIMES!
    • We are still waiting to hear back if the push chair (special needs stroller) that we requested will be covered by insurance... we pray for it to be covered as if it is, we pay close to $1000 :(, but if it's NOT it's more like $3000 :mad:... add "special needs" to anything, and it's a 300% increase! ugghh.

But don't get me wrong, even beyond all the worries and all my gripes and complaints, I am still beyond thankful for all in my life for not only do I have a wonderful husband (** i don't know how he puts up with me but second ex-husband is not an option!**) and a daughter that I could not ask more from but as they say "it takes a village to raise a child..." i have my own built in village... from my wonderful mother-in-law Norma who I love so much and I'm so happy she is in our and Devin's life, to my amazing parents who couldn't do more for us if they tried, to my sister and Denis' Aunts and cousins.

Thru the new school year woes, all the new worries that come with it, I have the most amazing people in my life and I thank you all!

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