Devin'sMile ~ DevinSmile

...Because a journey of a thousand miles
begins with a single step...

Welcome to Devin's website
... and follow his Journey, one mile at a time...

On May 25, 2007, 15-month old Devin was diagnosed with Isodicentric 15 Syndrome. Commonly referred to as dup15q Syndrome, it is a chromosome abnormality in which a child is born with extra genetic material from chromosome 15. Devin has 47 chromosomes, instead of the normal 46. The extra chromosome is made up of a piece of chromosome 15 that has been duplicated end-to-end like a mirror image.

Devin is still non-verbal and the reality is he may never talk.  He will require lifelong therapies and will have physical and developmental delays his entire life; and because dup15q in itself is one of the rare chromosome abnormalities our future is still quite uncertain. Devin's syndrome weighs heavy on us, but he lights up our life every day with his smile and mischievous eyes!  – With faith in God and our family's support we will get thru it all... one mile at a time with a smile in our hearts!

Thank you for all your support, with all our love
Devin, Arianna, Ivonne and Denis

"What seems to us as bitter trials
are often blessings in disguise"
                              ~ Oscar Wilde

“I am different, not less ”
                         ~ Temple Grandin